Experience of Special parent – Vetri (SCAN)

Hi All,

This is my first informative post, and it happens to be “World Autism Awareness Day” …Coincidence!

I have been a member of SCAN (Special Child Assistance Network) group in Telegram app for some time, recently they conducted a workshop called “On the Path to Success – My Journey with My Child”. This workshop was presented by a special parent Vetri, who made changes to his entire family lifestyle for his autistic son and began to see improvements. At the request of SCAN and many other parents, he delivered this session on 23rd March 2019 Morning …

I am sharing the important pointers from the workshop as it may be beneficial to others:

1) He is not a doctor, he made it very clear that the session is for sharing his experiences with his child.

2) Vetri’s second child is a son, born in Normal delivery, no complications. He was verbal till 1.5 years old used to call Mom and Dad. However there were few differences which his friends noticed in his son during friendly outings/ social gatherings such as not responding to name, not following the commands etc. and they asked Vetri to check this out from a professional. Vetri visited Ramachandra Hospital and had his son diagnosed by Dr.Udaya Kumar. All the classic Symptoms such as Non Verbal, No Eye Contact, Restlessness / No Socialization / Auditory and Sensory Issue were all present in him. His Son was properly diagnosed of Autism at the age of 2.5 years old.

3) Now what caused this autism in his son is unknown as with the case of all the parents. His residence had an impact during Chennai floods as a result the stagnant rain water along with drainage water entered in to the houses, forcing his family to stay
in the terrace for few days. This triggered few infections in his kid, was frequently hospitalized for Diarrhea which may be one of the factor. Also this duration coincides with the MMR Vaccine and Booster which his kid got earlier.

4) After formal diagnosis at the age of 2.5 years, he began therapy for his son. Age is an important Factor. He mentioned that it is extremely easy to work on kids who are less than 3 years old, as the brain development is not yet complete, so easy to teach/train them. Also to some extent it is easy to train kids less than 5 years old, as they would have attained close to 80% of brain development. For kids beyond the age of 5, the training will be hard / difficult/ Challenging as the kids would have developed routines/likes/dislikes/habits by that age, which requires more effort and time on therapies.

5) Following are the possible causes of Autism as per him:

a) Wireless signals increases anxiety, he suggests to use Wi-Fi when required and not to be switched on all the time at the home.
b) Electronic Gadgets promotes one way communication
c) Throat Infection often caused by Acid Reflux
d) MMR Vaccine
e) Loose Gut
f) Cough during pregnancy, especially Rubella cough which impacts the baby.
g) Genetics

6) Complimentary Medicines:
Since there is no direct cure/medicine identified for Autism as such, he termed the following as Complimentary medicines that he has tried:

a) Ayurveda Medicine – He is providing Ayurveda medicine to his child, which involves medicated honey. He is consulting Dr.
MadhooSudhanan in Kilpauk.
b) Siddha – He is not providing siddha medicines, however following the diet as per Siddha or providing food sources that has medicine properties.

c) Nemcheck Protocol – This protocol suggests providing Inulin, Olive oil, instead of direct medicine he gives natural supplements of Inulin such as raw small onions, garlic etc. …and coconut oil…
d) PEMF (Pulsed electromagnetic field therapy) Therapy = This therapy will stimulate the Micro nerves and improve the blood circulation.

e) Allopath – Vitamin supplements can be given.
f) Occupational and Speech Therapy is enough, no other therapies are required. Go for MOT therapists and not BOT therapists.
g) EMR Lowering Protocol – Electromagnetic Radiation protocol involves sitting in place where there are no waves.
i) Stem Cell Therapy – This does not work, the improvements which the parents see in their child is due to the longer duration of time spent by parents with the kids and not due to the stem cells. It is more of placebo effect.

7) His Observations:

a) In foreign they are providing rubella vaccine to the mother before pregnancy to avoid it, this trend has not come to our country, we are bit backdated with recent practices followed across the globe.
b) Vegas Nerves connects stomach to brain.
c) Immunity will be weak for special kids
d) They will be deficient for Vitamin D and Vitamin B12
e) Spleen is the main organ that transforms vitamins to the body.
f) Lymph node system is full of water which cleans the body.
g) Endocrine creates hormones and all other glands needs more oxidation.
h) Kids will listen to us, when their anxiety level comes down.
i) Main infection with autism kids is the Yeast Infection called as Candida. This is one of the reason why doctors advises patients to avoid milk during sickness.

8) He suggested following Sensory Tools to be used:
Use peanut ball, Rope ladder, Alphabet Laptop, Hopping Rings, Puzzles, Tunnels, etc. ..

9) What was done at home?

a) His son used to shout, hearing the sound of cooker whistle, to resolve that they made his son to put whistle on the cooker so that he becomes aware and does not fear / get irritated of the noise again.
b) Vetri’s elder daughter takes care of his son very well, he often names her the Therapist in the Family. He made her teach him new words every day, develop reading habbits, trained him to goggle etc. ….
c) His Son was scared at times to go to bathroom because it is a closed space, hence we used backyard for urine passing, hence there was no fear of closed space.

d) His Son brushes his teeth with his favorite monkey sticker brush, he does role play with rhymes in school…
e) Kept a calendar at child’s height, to know the dates and days.
f) For wheezing problem, using the toy that floats when it is blown with air.
g) His son does the activity of taking a ring from one end, ride his cycle and go to the other end place it and come back …re do
h) Mike – Singing and recording rhymes, to encourage speaking.
i) He has Avoided tooth paste for the entire family and began using herbal powder.

10) Physical Activity

a) During weekends, he visits Besant nagar beach with his kid and plays at beach for 2 hours.
b) Deep breathe activities such as climbing ladder, playing in peanut shaped gym ball. Deep breath activities improves the respiratory system.
c) Brisk Walk and Laugh loudly.
e) His kid plays skating at the terrace..

11) Diet and Food (90% of the improvement lies in the diet.)

a) Food Diary – This is extremely important as the food which the child intakes is the reason for 90% of the issues faced. Maintain a food diary with details like: List of food he likes / List of foods he dislikes / List of food which he should ideally eat.
Now make a comparison, whether all he food he likes are the food items which he should ideally eat or not, if not begin substituting the ideal food items in a fashion that it makes it to the list of foods he likes.

b) When providing fruits to kids, do not mix multiple fruits at salads. Provide one fruit at a time as each fruit has different elements of vitamins, minerals etc. …it is not beneficial to everything in a mixed manner. Guava has the highest component of
vitamin E.

c) Include Raw Veggies to his diet such as Carrot, Onion and Tomato. 70% of the body is formed of Micro nerves which cannot be seen. Only coconut oil and carrot have the ability to reach this nerves. Tomato has more vitamins.
d) Breakfast should be of Steam based such as Idly, Idiyappam, appam, dosa … Make adjustments to these items such as add Vallarai keerai in dosai etc..

e) White sugar helps bad bacteria, hence it should be avoided. Use palm sugar as the substitute. White sugar also causes anxiety. It also triggers yeast infection.
f) He mentioned Casein free diet works well only in case of A1 milk, which is mainly available in USA as they spread Yeast infection. The milk which we get in India is A2 milk, which does less harm.
Also give milk that is extracted from cow in front of your eyes, there should not be mixing of milk from multiple cows either.
g) Reduce chapatti intake at night, if given restrict to single piece. Mix millets, pepper etc with Wheat so the healthy component reaches the body.

h) Avoid Maida items such as biscuits, barotta etc .. Avoid Cool Drinks
i) Provide juices which has vitamin value such as Lemon Juice
j) Avoid sweet corn and use traditional makka chollam ..
k) His child drinks butter milk, millet foods
l) Try to make your child drink warm water mostly.
m) Avoid buying Seer Fish (Vanjiram Fish) as they are using chemicals that is used to preserve dead bodies/corpses.
n) For Acid reflux children, avoid potatoes and nuts. Any items that is grown below the ground will have acid reflux.
o) Ensure either Ginger, Turmeric, Black pepper or Garlic should be consumed daily once, as they are natural antibiotic.
p) One food item of sour and one food item of bitter type of taste must be consumed daily in some other form.
q) Natural foods are currently consumed:
Ginger, Raw Garlic, Raw Onion, Turmeric, Neem Leaves, Butter Milk, Coconut Oil, Ghee, Ura Marundhu, Omam Water, Arrow root powder, Rock Salt bath, Lemon Juice, Gingely Oil bath, Black pepper, Mint chutney, Honey, coconut milk.

12) His Suggestions:

a) Urai Marunthu is a combination of Jathi Kai, Maasi Kai and Kadukai, which is given to kids/babies on a daily basis till they reach certain age, this is an equivalent medicine to Vaccination. You need not vaccinate, if you are giving urai marunthu.
Urai marunthu generates lot of heat inside the body which the virus cannot withstand as a result virus dies.
b) If your kid is facing stool or constipation issues, provide 1 tsp of Coconut oil in the night or 1 tsp of ghee in the morning.
Coconut oil and ghee has the ability of mix with the cells including dead cells. It develops White blood cells. Coconut oil has less viscosity, the atoms will be closer. Castor oil has more viscosity.

c) No Electronic Gadgets in bedroom. Bedroom should contain blankets, pillows and a mattress, nothing else which can distract a child in to a different mindset.

d) Garlic contains Sulfuric acid, when consumed raw this fights against infections in the system. If it is consumed in a boiled or fried state, it can remove the gas. Garlic should only be given in the night and not in the morning.
Garlic along with Turmeric acts as a Blood purifier and Blood Thinner. Garlic oil is also available in the markets.
e) Try to use organic produce from the farmers to the extent possible…

f) Monitor the bowel movement of Kids. If it is Mushy it is NOT GOOD, it should be solid. Keep changing the diet based on the bowel movement.
g) In case of cough / cold, they are trying to bring out the bad from the body. Use the natural viral manjal, smoke it in fire and inhale it … this fixes the wheezing or Sinus.
h) When giving food items to kids which are not tasty, deceive the kid with some other items or mix the food item with honey or other substance so the kid consumes it by mouth.

i) Do not treat your child separately, everyone in the family should make the change so that it becomes a natural process, kids observe and follow what others do.

j) Develop self-activities like Urine passing, Brush, Goggling, Eating Fruits, bathing, getting dressed, drinking water, wearing chappals, dress change, watch TV, play with toys, read books…
k) Temples will have different flooring which gives necessary sensation. Visit temples weekly once.. Dhrishti with camphor smell as it enhances 7 chakras… Temple bell will stimulate ear drums.
l) ABA therapy is not advisable for full time. It will not help the kid to think themselves. It will train our child like Dolphin / Whale. Don’t do it beyond 6 months …
m) Oil bath using gingely oil and make him sit in sun light for few minutes. Apply coconut oil in belly button. Can apply herbs like kuppameni and keezhanelli in skin.
n) For cooking, do not use refined oil. He is using cold pressed Gingely oil for all purposes at home. If there is no acid reflux, others can make use of cold pressed ground nut oil as well.

o) For parents in dilemma who wants to give vaccination but also worried about its impact, can provide ura marunthu for 2-3 days
continuously from the day of giving vaccination which should remove the toxins if any caused by vaccination.
p) For ear infection, use garlic in the ear, the sulfuric acid will melt the wax.
q) Always have positive thoughts and beliefs … Tie Dhrishti kal at home …(Salt+ Lemon)… Cut Lemon and keep it in vasakal… Pituitary gland generates hormone based on the environments positive or negative energy around us.

Vetri is currently taking Acupuncture classes with the intention to helping his child. Mr.Gopi from scan suggested a Acupressure specialist P.S.Lalitha from Kotivakkam, who does it with an intention to treat others and not make money.

(For people who wants to know about scan, visit their website http://www.scanfamily.org or Facebook page

http://www.facebook.com/groups/specialchildassistancenetwork/)

(I shared the above based on whatever notes i could scribble during the workshop, hence i am sure would have missed few pointers)

Regards,
Saranya & Karthikeyan